Introduction to HHT-specific terminology, the basic clinical features of HHT including the Curacao diagnostic criteria, and the differences between a telangiectasia and an AVM. Also, learn about which body systems... Read More
In this session, we will review standards of care, adult screening guidelines from the updated international guidelines, diagnostic tests and frequency of testing for HHT patients. Pediatric screening guidelines will... Read More
Anemia & iron deficiency are the most common manifestations for HHT patients secondarily to nosebleeds. This session will discuss the most effective ways to manage anemia in HHT patients and... Read More
Arteriovenous Malformations (AVMs) represent one of the most important manifestations of HHT. This session will discuss the symptoms and most current therapeutic approaches to AVMs in the brain and lungs.
It is important to know the basic science behind HHT to understand our current and future research initiatives. Cassi Friday, PhD will present our research roadmap, Panagis Galiatsatos, MD, MHS,... Read More
Do you have chronic bleeding for HHT? Learn about your medical and therapeutic treatment options for bleeding. Gastrointestinal (GI) bleeding tends to go untreated and is often misdiagnosed. Learn how... Read More
Learn the medical terminology used by ENTs and the benefits of using the Epistaxis Severity Score (ESS) to evaluate nosebleeds and the effectiveness of treatments. Discover the cutting-edge surgeries now... Read More
Cure HHT Staff Learn about Cure HHT resources, including how to partner with Cure HHT for awareness, legislative initiatives in your own state, educating your physicians, insurance ins and outs,... Read More