National
Conference

HHT PATIENT & PHYSICIAN

June 3-4 2023
/
Seattle, Washington
Register Now!

Hear from Board Member Jim Lapides about why YOU should attend!

We’re thrilled to be back hosting in-person conferences once again! And our first National conference in some time will be one patients and healthcare professionals alike won’t want to miss! Register today to join us for our National Patient & Physician Conference on June 3-4, in Bellevue, Washington just outside of Seattle.

Patients – why should you attend?

  • There has been tremendous growth in terms of recommendations to screening guidelines and treatments. If you haven’t attended a conference in some time, you may not have the latest info!

  • Talk 1-on-1 with the world’s top experts! You’ll be rubbing elbows with the best and brightest in HHT care and research. This is an unbeatable opportunity to get your questions answers from the world’s experts.

  • Be the first to know! Hear about groundbreaking innovations in research and treatment happening in HHT that have the potential to transform the lives of HHT patients in the years ahead.

  • Take charge of your care! There’s simply no better way to equip yourself with the knowledge to advocate for yourself and your family than by attending.

Healthcare professionals – why should you attend?

  • CME/CEU credits available

  • Topics will cover HHT standards of care, genetics, pediatrics, HHT case presentations, and more!

  • There’s simply no better forum to foster true collaboration between clinicians and researchers than a Cure HHT conference!

Who we are

Donec id elit non mi porta gravida at eget me tus. Sed posuere consectetur estat lobo rtis. Cum sociis natoque.

Learn More

What we do

Donec id elit non mi porta gravida at eget me tus. Sed posuere consectetur estat lobo rtis. Cum sociis natoque.

Learn More

Why us?

Donec id elit non mi porta gravida at eget me tus. Sed posuere consectetur estat lobo rtis. Cum sociis natoque.

Learn More

Agenda

This conference will be held June 3rd - 4th 2023.
Day 1
02 Jun 2023
Day 2
03 Jun 2023
Day 3
04 Jun 2023

Welcome

A warm welcome from Cure HHT. Learn about our organization, current research, and our HHT community.
Marianne Clancy, MPA

HHT Overview

Introduction to HHT-specific terminology, the basic clinical features of HHT including the Curacao diagnostic criteria, and the differences between a telangiectasia and an AVM. This session will explain the general...
Read More
Mark Chesnutt, MD

HHT Screening and Guidelines

In this session, we will review standards of care, screening guidelines, and diagnostic tests and frequency of testing for HHT patients.
Steve Hetts, MD

Q&A Panel

HHT Overview & HHT Screening & Guidelines
Steve Hetts, MD
Mark Chesnutt, MD

Genetics: Unraveling your DNA

What is DNA? Learn about the inheritance pattern of HHT, the newly identified HHT genes, the role of genetics on family planning, new genetic testing programs and the impact of...
Read More
Katie Wusik, MS, CGC

Tangled Web of AVMs

Arteriovenous Malformations (AVMs) represent one of the most important manifestations of HHT. This session will discuss the symptoms and therapeutic approaches to AVMs in the brain and lungs.
Steve Hetts, MD
Claire Kaufman, MD

Q&A Panel

Genetics & AVMs
Katie Wusik, MS, CGC
Steve Hetts, MD
Claire Kaufman, MD

Concurrent Session 1: Screening Guidelines & Tangled Web of AVMs; HHT COE Visit

1:30pm – 2:15pm (45 minutes) Q&A Breakout- Screening Guidelines & Tangled Web of AVMs 2:15pm – 3:00pm (45 Minutes) HHT Center of Excellence Visit
Brittany Steed, MA
Claire Kaufman, MD
Mark Chesnutt, MD

Concurrent Session 2: Family Planning, Pregnancy, Pediatrics

Raj Kasthuri, MD, MBBS
Els De Gussem, MD
Katie Wusik, MS, CGC

GI Bleeding, Iron Deficiency, and Anemia

Trying to figure out the cause of your anemia? Gastrointestinal(GI) bleeding tends to go untreated and is often misdiagnosed. Learn how to recognize the symptoms related to HHT in the...
Read More
Raj Kasthuri, MD, MBBS

The Heart of the Matter and Aging

Discover how to care for your HHT in coordination with other medical conditions. This session will cover a variety of topics that are associated with aging including how liver AVMs...
Read More
Kevin Whitehead, MD
Edda Spiekerkoetter, MD

Q&A Panel

GI Bleeding, Anemia, & Iron Deficiency & The Heart of the Matter and Aging
Raj Kasthuri, MD, MBBS
Kevin Whitehead, MD
Edda Spiekerkoetter, MD

Living with HHT

Explore the effects of HHT on your mental health and family relationships and learn coping skills that can help you live better with HHT. Get tips on how to educate...
Read More

Nosebleed Management Panel

-Medical Treatment -Surgical Treatment -Drug Therapy Learn the medical terminology used by ENTs and the benefits of using the Epistaxis Severity Score (ESS) to evaluate nosebleeds and the effectiveness of...
Read More
Jeb Justice, MD
Holly Boyer, MD
Bryan McCrae, MD

Concurrent Session 1: Q&A Breakout -Nosebleeds, Bleeding, Iron/Anemia

Q&A Breakout – Nosebleeds, Bleeding, Iron/Anemia
Jeb Justice, MD
Holly Boyer, MD
Raj Kasthuri, MD, MBBS
Bryan McCrae, MD

Concurrent Session 2: Q&A Breakout – Living with HHT & Aging and HHT

Q&A Breakout – Living with HHT & Aging and HHT
Kevin Whitehead, MD
Katie Wusik, MS, CGC
Edda Spiekerkoetter, MD

Advancing the Cure: An HHT Research Update

It is important to know the basic science behind HHT to understand our current and future research initiatives. Dr. Hughes will define scientific terms, explain the relationship between basic, clinical,...
Read More
Cassi Friday, PhD
Murali Chakinala, MD
Chris Hughes, PhD

Research Presentations

Two researchers will present their research topics to the patients and providers.

Hotel

Hyatt Regency Bellevue
900 Bellevue Way NE Bellevue, WA 98004
(425) 462-1234conference@curehht.org

Reserve Your Room

Abstract Submission Deadline Extended!

We are excited to announce that we are accepting abstracts for research posters and presentations in Seattle! Those trainees* with top scoring abstracts will be awarded a conference stipend and will present their research to all conference attendees in Three Minute Thesis (3MT®) style. Don’t miss this opportunity to present directly to HHT patients and physicians! *Submissions are only open to trainees (Undergraduates, Graduate Students, Post-docs, Medical Students, Residents, Clinical Fellows, or PhD Candidates).

“After my attendance at this conference, I understand even more his enthusiasm and appreciation for the foundation. I left the conference with a warm feeling of kinship and a sense of hope. Thank you for your ongoing efforts and support!”

Maria K.

 

“Excellent conference. Speakers and doctors were very approachable and helpful.”

Patricia G.

Just wanted to thank you and the Cure HHT staff for an amazing experience.  Other than my dad, this is the first time I’ve actually been with people who have HHT, and it was so comforting to know that I wasn’t alone anymore.”

Lynne S.