|

Medical Professional Agenda

Download Combined Agenda

Day 1
05 Apr 2024
5:00 pm-6:30 pm
Alloy Ballroom Foyer

Registration & Meet and Greet

Day 2
06 Apr 2024
7:30 am-8:30 am
Alloy Ballroom Foyer

Check-in & Breakfast

8:15 am-8:30 am
Alloy Ballroom A/B

For First Time Attendees: About Cure HHT

8:30 am-8:45 am
Alloy Ballroom A/B
Marianne Clancy, MPA

Welcome

A warm welcome from Cure HHT. Learn about our organization, current research, and our HHT community.
Marianne Clancy, MPA
8:45 am-9:00 am
Alloy Ballroom A/B

Patient Story

9:00 am-9:45 am
Alloy Ballroom C
Allyson Pishko, MD, MSCE

*Management of Chronic Blood Loss & Iron Replacement Therapy (CME)

Providers will learn about screening for iron deficiency anemia, formulating patient-specific iron replacement strategies, and strategies for managing chronic blood loss in patients with HHT.
Allyson Pishko, MD, MSCE
9:45 am-10:30 am
Alloy Ballroom C
Lauren Beslow, MD, MSCE, FAHA

*HHT in Children (CME)

Providers will learn the clinical and screening guidelines for children and the differences in HHT manifestations between adults and children.
Lauren Beslow, MD, MSCE, FAHA
10:30 am-10:45 am
Alloy Ballroom C
Lauren Beslow, MD, MSCE, FAHA

Q&A Panel

-HHT in Children
Lauren Beslow, MD, MSCE, FAHA
10:45 am-11:00 am
Alloy Ballroom Foyer

Break

11:00 am-11:45 am
Alloy Ballroom C
Vladimir Sheynzon, MD, MBA
Charles Murphy, MD

*HHT: An Overview of Pulmonary AVMs (CME)

Providers will learn how to understand and utilize the diagnostic criteria for HHT, screening for pulmonary AVMs, recognizing complications of untreated pulmonary AVMs, and understand treatment options for pulmonary AVMs.
Vladimir Sheynzon, MD, MBA
Charles Murphy, MD
11:45 am-12:30 pm
Alloy Ballroom C
Theodore Drivas, MD, PhD

*Diagnosing HHT: Curaçao Clinical Criteria and Utilizing Genetic Testing (CME)

Providers will learn the clinical diagnostic criteria for HHT, understand the utility of genetic testing for HHT, and be able to identify patients and family members with/at risk for HHT...
Read More
Theodore Drivas, MD, PhD
12:30 pm-12:45 pm
Alloy Ballroom C
Vladimir Sheynzon, MD, MBA
Theodore Drivas, MD, PhD
Charles Murphy, MD

Q&A Panel

HHT: An Overview of Pulmonary AVMs Diagnosing HHT: Curaçao Clinical Criteria and Utilizing Genetic Testing
Vladimir Sheynzon, MD, MBA
Theodore Drivas, MD, PhD
Charles Murphy, MD
12:30 pm-1:30 pm
Hotel Restaurant & Bar

Lunch

1:30 pm-3:15 pm
Alloy Ballroom A/B
Sophia Kemble, MSN, RN
Theodore Drivas, MD, PhD

Concurrent Session 1: Take Charge of Your Care

1:30pm-2:00pm HHT Center of Excellence Visit In this session, you’ll learn what to expect when visiting a center of excellence as a new patient and as a returning patient. You’ll...
Read More
Sophia Kemble, MSN, RN
Theodore Drivas, MD, PhD
1:30 pm-3:15 pm
Alloy Ballroom C
Lauren Beslow, MD, MSCE, FAHA
Katie Wusik, MS, CGC

Concurrent Session 2: Planning for your Family: Family Planning, & HHT Care for Kids

1:30pm-2:00pm Family Planning Ready to start your family or know who is? In this session, we will go over pre-implantation genetic testing and family planning with HHT.   2:00pm-2:45pm HHT...
Read More
Lauren Beslow, MD, MSCE, FAHA
Katie Wusik, MS, CGC
3:15 pm-3:30 pm
Alloy Ballroom Foyer

Break

3:30 pm-4:30 pm
Alloy Ballroom A/B
Raj Kasthuri, MD, MBBS

The Heart of the Matter and Aging

Discover how to care for your HHT in coordination with Pulmonary Hypertension. This session will cover a variety of topics that are associated with aging including how liver AVMs can...
Read More
Raj Kasthuri, MD, MBBS
4:30 pm-4:45 pm
Alloy Ballroom A/B
Raj Kasthuri, MD, MBBS

Q&A Panel

The Heart of the Matter & Aging
Raj Kasthuri, MD, MBBS
5:00 pm-6:30 pm
Alloy Ballroom C

Welcome Reception & Group Photo

Join us for some Hors De Oeuvres and Drinks!
Day 3
07 Apr 2024
7:30 am-8:30 am
Alloy Ballroom Foyer

Breakfast

8:30 am-8:45 am
Alloy A/B

Patient Story

8:45 am-10:00 am
Alloy Ballroom A/B
Arndt Siekmann, PhD
Cassi Friday, PhD
Raj Kasthuri, MD, MBBS

Advancing the Cure: An HHT Research Update

It is important to know the basic science behind HHT to understand our current and future research initiatives. Cassi Friday, PhD will present our research roadmap, Raj Kasthuri, MD, MBBS,...
Read More
Arndt Siekmann, PhD
Cassi Friday, PhD
Raj Kasthuri, MD, MBBS
10:00 am-11:00 am
Alloy Ballroom A/B
Raj Kasthuri, MD, MBBS

Chronic Bleeding Management: Nosebleeds & GI Bleeding

Do you have chronic bleeding for HHT? Learn about your medical and therapeutic treatment options for bleeding. Gastrointestinal (GI) bleeding tends to go untreated and is often misdiagnosed. Learn how...
Read More
Raj Kasthuri, MD, MBBS
11:00 am-11:30 am
Alloy Ballroom A/B
Jeb Justice, MD

Nosebleed Interventions

Learn the medical terminology used by ENTs and the benefits of using the Epistaxis Severity Score (ESS) to evaluate nosebleeds and the effectiveness of treatments. Discover the cutting-edge surgeries now...
Read More
Jeb Justice, MD
11:15 am-11:30 am
Alloy Ballroom Foyer

Break

11:30 am-12:00 pm
Alloy Ballroom A/B
Jeb Justice, MD
Raj Kasthuri, MD, MBBS

Concurrent Session 1: Q&A Breakout – Chronic Bleeding Management: Nosebleeds & GI Bleeding

Chronic Bleeding Management: Nosebleeds & GI Bleeding Nosebleed Interventions
Jeb Justice, MD
Raj Kasthuri, MD, MBBS
11:30 am-12:00 pm
Alloy Ballroom C
Arndt Siekmann, PhD
Cassi Friday, PhD
Raj Kasthuri, MD, MBBS

Concurrent Session 2: Q&A Breakout – Advancing the Cure: An HHT Research Update

Advancing the Cure: An HHT Research Update
Arndt Siekmann, PhD
Cassi Friday, PhD
Raj Kasthuri, MD, MBBS
12:15 pm-12:45 pm
Alloy Ballroom A/B
Marianne Clancy, MPA

Closing Remarks

Marianne Clancy, MPA
12:30 pm-12:45 pm
Alloy Ballroom A/B

Q&A Session

Cure HHT Staff How to Advocate for your Health

Accreditation Information:

 

In support of improving patient care, this activity has been planned and implemented by the Cure HHT and Washington University School of Medicine in St. Louis. Washington University School of Medicine in St Louis is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

Credit Provided By

Washington University School of Medicine in St. Louis, Continuing Medical Education

Disclosure Statement

It is the policy of Washington University School of Medicine in St. Louis, Continuing Medical Education, that planners, faculty, and other persons who may influence content of this CME activity disclose all relevant financial relationships with commercial interests in order for CME staff to identify and mitigate any potential conflicts of interest prior to the educational activity. Faculty must also disclose any planned discussion of off-label/unapproved uses of drugs or devices during their presentation. Detailed disclosures will be available prior to the activity.

 

The HHT Continuing Education Program is fully supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) as part of an award totaling $5,862,638 with 0 percentage financed with non-governmental sources. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by HRSA, HHS or the U.S. Government.