Medical Professional Agenda

Providers will learn about screening for iron deficiency anemia, formulating patient-specific iron replacement strategies, and strategies for managing chronic blood loss in patients with HHT.

Allyson Pishko, MD, MSCE

9:45 am-10:30 am

Alloy Ballroom C

Lauren Beslow, MD, MSCE, FAHA

*HHT in Children (CME)

Providers will learn the clinical and screening guidelines for children and the differences in HHT manifestations between adults and children.

Lauren Beslow, MD, MSCE, FAHA

10:30 am-10:45 am

Alloy Ballroom C

Lauren Beslow, MD, MSCE, FAHA

Q&A Panel

-HHT in Children

Lauren Beslow, MD, MSCE, FAHA

10:45 am-11:00 am

Alloy Ballroom Foyer

Break

11:00 am-11:45 am

Alloy Ballroom C

Vladimir Sheynzon, MD

Charles Murphy, MD

*HHT: An Overview of Pulmonary AVMs (CME)

Providers will learn how to understand and utilize the diagnostic criteria for HHT, screening for pulmonary AVMs, recognizing complications of untreated pulmonary AVMs, and understand treatment options for pulmonary AVMs.

Vladimir Sheynzon, MD

Charles Murphy, MD

11:45 am-12:30 pm

Alloy Ballroom C

Theodore Drivas, MD, PhD

*Diagnosing HHT: Curaçao Clinical Criteria and Utilizing Genetic Testing (CME)

Providers will learn the clinical diagnostic criteria for HHT, understand the utility of genetic testing for HHT, and be able to identify patients and family members with/at risk for HHT...

Theodore Drivas, MD, PhD

12:30 pm-12:45 pm

Alloy Ballroom C

Vladimir Sheynzon, MD

Theodore Drivas, MD, PhD

Charles Murphy, MD

Q&A Panel

HHT: An Overview of Pulmonary AVMs Diagnosing HHT: Curaçao Clinical Criteria and Utilizing Genetic Testing

Vladimir Sheynzon, MD

Theodore Drivas, MD, PhD

Charles Murphy, MD

12:30 pm-1:30 pm

Hotel Restaurant & Bar

Lunch

1:30 pm-3:15 pm

Alloy Ballroom A/B

Sophia Kemble, MSN, RN

Theodore Drivas, MD, PhD

Concurrent Session 1: Take Charge of Your Care

1:30pm-2:00pm HHT Center of Excellence Visit In this session, you’ll learn what to expect when visiting a center of excellence as a new patient and as a returning patient. You’ll...

Sophia Kemble, MSN, RN

Theodore Drivas, MD, PhD

1:30 pm-3:15 pm

Alloy Ballroom C

Lauren Beslow, MD, MSCE, FAHA

Katie Wusik, MS, CGC

Concurrent Session 2: Planning for your Family: Family Planning, & HHT Care for Kids

1:30pm-2:00pm Family Planning Ready to start your family or know who is? In this session, we will go over pre-implantation genetic testing and family planning with HHT. 2:00pm-2:45pm HHT...

Lauren Beslow, MD, MSCE, FAHA

Katie Wusik, MS, CGC

3:15 pm-3:30 pm

Alloy Ballroom Foyer

Break

3:30 pm-4:30 pm

Alloy Ballroom A/B

Raj Kasthuri, MD, MBBS

The Heart of the Matter and Aging

Discover how to care for your HHT in coordination with Pulmonary Hypertension. This session will cover a variety of topics that are associated with aging including how liver AVMs can...

Raj Kasthuri, MD, MBBS

4:30 pm-4:45 pm

Alloy Ballroom A/B

Raj Kasthuri, MD, MBBS

Q&A Panel

The Heart of the Matter & Aging

Raj Kasthuri, MD, MBBS

5:00 pm-6:30 pm

Alloy Ballroom C

Welcome Reception & Group Photo

Join us for some Hors De Oeuvres and Drinks!

Day 3

07 Apr 2024

7:30 am-8:30 am

Alloy Ballroom Foyer

Breakfast

8:30 am-8:45 am

Alloy A/B

Patient Story

8:45 am-9:45 am

Alloy Ballroom A/B

Arndt Siekmann, PhD

Panagis Galiatsatos, MD, MHS

Cassi Friday, PhD

Advancing the Cure: An HHT Research Update

It is important to know the basic science behind HHT to understand our current and future research initiatives. Cassi Friday, PhD will present our research roadmap, Panagis Galiatsatos, MD, MHS,...

Arndt Siekmann, PhD

Panagis Galiatsatos, MD, MHS

Cassi Friday, PhD

9:45 am-10:45 am

Alloy Ballroom A/B

Raj Kasthuri, MD, MBBS

Chronic Bleeding Management: Nosebleeds & GI Bleeding

Do you have chronic bleeding for HHT? Learn about your medical and therapeutic treatment options for bleeding. Gastrointestinal (GI) bleeding tends to go untreated and is often misdiagnosed. Learn how...

Raj Kasthuri, MD, MBBS

10:45 am-11:45 am

Alloy Ballroom A/B

Jeb Justice, MD

Nosebleed Interventions

Learn the medical terminology used by ENTs and the benefits of using the Epistaxis Severity Score (ESS) to evaluate nosebleeds and the effectiveness of treatments. Discover the cutting-edge surgeries now...

Jeb Justice, MD

11:15 am-11:30 am

Alloy Ballroom Foyer

Break

11:30 am-12:00 pm

Alloy Ballroom A/B

Jeb Justice, MD

Raj Kasthuri, MD, MBBS

Concurrent Session 1: Q&A Breakout – Chronic Bleeding Management: Nosebleeds & GI Bleeding

Chronic Bleeding Management: Nosebleeds & GI Bleeding Nosebleed Interventions

Jeb Justice, MD

Raj Kasthuri, MD, MBBS

11:30 am-12:00 pm

Alloy Ballroom C

Arndt Siekmann, PhD

Panagis Galiatsatos, MD, MHS

Cassi Friday, PhD

Concurrent Session 2: Q&A Breakout – Advancing the Cure: An HHT Research Update

Advancing the Cure: An HHT Research Update

Arndt Siekmann, PhD

Panagis Galiatsatos, MD, MHS

Cassi Friday, PhD

12:00 pm-12:30 pm

Alloy Ballroom A/B

How to Advocate for Your Health

Cure HHT Staff Learn about Cure HHT resources, including how to partner with Cure HHT for awareness, legislative initiatives in your own state, educating your physicians, insurance ins and outs,...

12:30 pm-12:45 pm

Alloy Ballroom A/B

Q&A Session

Cure HHT Staff How to Advocate for your Health

12:45 pm-1:00 pm

Alloy Ballroom A/B

Marianne Clancy, MPA

Closing Remarks

Marianne Clancy, MPA

ACCREDITATION

In support of improving patient care, this activity has been planned and implemented by Cure HHT and Washington University School of Medicine in St. Louis. Washington University School of Medicine in St. Louis is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

CREDIT Available for this Activity:

American Medical Association (AMA): Washington University School of Medicine in St. Louis designates this live activity for a maximum of 4.75 AMA PRA Category 1 Credits^TM. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

American Nurses Credentialing Center (ANCC): Washington University School of Medicine in St. Louis designates this live activity for a maximum of 4.75 ANCC contact hours.

Interprofessional Continuing Education (IPCE): This activity was planned by and for the healthcare team, and learners will receive a maximum of 4.75 Interprofessional Continuing Education (IPCE) credit for learning and change.

Medical Professional Agenda

ACCREDITATION

CREDIT Available for this Activity:

American Medical Association (AMA): Washington University School of Medicine in St. Louis designates this live activity for a maximum of 4.75 AMA PRA Category 1 CreditsTM. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

American Nurses Credentialing Center (ANCC): Washington University School of Medicine in St. Louis designates this live activity for a maximum of 4.75 ANCC contact hours.

Interprofessional Continuing Education (IPCE): This activity was planned by and for the healthcare team, and learners will receive a maximum of 4.75 Interprofessional Continuing Education (IPCE) credit for learning and change.

American Medical Association (AMA): Washington University School of Medicine in St. Louis designates this live activity for a maximum of 4.75 AMA PRA Category 1 Credits^TM. Physicians should claim only the credit commensurate with the extent of their participation in the activity.