Concurrent Session 2: Planning for your Family: Family Planning, & HHT Care for Kids
1:30pm-2:00pm Family Planning Ready to start your family or know who is? In this session, we will go over pre-implantation genetic testing and family planning... Read More
Concurrent Session 1: Take Charge of Your Care
1:30pm-2:00pm HHT Center of Excellence Visit In this session, you’ll learn what to expect when visiting a center of excellence as a new patient and... Read More
Q&A Panel
Iron Matters: Understanding Anemia, Iron Deficiency & GI Bleeding Tangled Web of AVMs
Tangled Web of AVMs
Arteriovenous Malformations (AVMs) represent one of the most important manifestations of HHT. This session will discuss the symptoms and most current therapeutic approaches to AVMs... Read More
Iron Matters: Understanding Anemia, Iron Deficiency
Anemia & iron deficiency are the most common manifestations for HHT patients secondarily to nosebleeds. This session will discuss the most effective ways to manage... Read More
HHT Screening & Guidelines
In this session, we will review standards of care, adult screening guidelines from the updated international guidelines, diagnostic tests and frequency of testing for HHT... Read More
HHT Overview
Introduction to HHT-specific terminology, the basic clinical features of HHT including the Curacao diagnostic criteria, and the differences between a telangiectasia and an AVM. Also,... Read More